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Jenny Maddox is the Lange Middle School Registrar and organizes a fundraising event for students to bring awareness and help in finding a cure for Batten Disease.
Lange Middle School students are raising money for a classmate, Austin Hein, who was diagnosed with Batten disease early in his childhood.
Batten disease is an inherited disorder of the nervous system.
The disease is fatal and the most-common form of neuronal ceroid lipofuscinoses.
Symptoms include mental impairment, worsening seizures and the progressive loss of sight and motor skills.
It is estimated to occur in 2 to 4 of every 100,000 live births in the United States.
Source: bdsra.org
The eight 6th and 7th grade teams competed amongst each other with a "Penny War," donating all funds to Batten research.
The competition ran from Monday through Thursday.
The students and staff of Lange Middle School raised $700.
The donation will be presented to the family tomorrow evening during a trivia night to benefit Batten research. Doors open for the trivia night at 5:30 p.m. Friday at the Lange Middle School Cafetorium. The first round of trivia begins at 7 p.m. The cost is $80 for a table of eight or $10 per individual at the door.
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